Free

Rare Disease UK AGM

Event Information

Share this event

Date and Time

Location

Location

Royal College of Paediatrics and Child Health

5 Theobalds Road

London

WC1X 8SH

United Kingdom

View Map

Friends Who Are Going
Event description

Description

Please join us for the Rare Disease UK Annual General Meeting (AGM) which is talking place on Tuesday 23 May at the Royal College of Paediatrics and Child Health. The AGM will provide an opportunity to hear about the progress that the Rare Disease UK campaign made in 201, and attendees will also hear from a number of exciting guest speakers!

There will be plenty of time to network with a wide range of stakeholders at the AGM including patients, family members, representatives of patient organisations, health professionals, researchers, and industry. Speakers will include:

  • Natasha Coates, Elite Disability Gymnast affected by Mast Cell Activation Syndrome (MCAS) (TBC);
  • Deborah Haynes, Defence Editor at The Times who was diagnosed with atypical haemolytic uraemic syndrome (aHUS);
  • Alastair Kent OBE, Chair of Rare Disease UK;
  • Professor Gina Radford, Deputy Chief Medical Officer and Champion of rare diseases (TBC).

A copy of our Activity Report with our financial statement will also be available for all attendes.

Lunch will be provided from 1pm. Please get in touch if you have any dietary requirements that we can help with. Please also contact the team if you have any accessibility issues.

We look to seeing you soon!

Share with friends

Date and Time

Location

Royal College of Paediatrics and Child Health

5 Theobalds Road

London

WC1X 8SH

United Kingdom

View Map

Save This Event

Event Saved