Are you a patient, family member or friend of someone with a rare eye disease?
If the answer is yes then this half day event will be of interest to you. With:
- Updates from top researchers about research progress and future plans
- A chance to have your say about research
- An opportunity to get hands on with TACTILE - the Whitworth's contemporary textile resource featuring artists from its collection
The event is free to attend and lunch and refreshments will be provided!
12:00 Arrival & Lunch
13:00 Prof Graeme Black “Welcome & Introduction”
13:10 Prof Graeme Black “Rare diseases, 100,000 genomes & national perspectives”
13:30 Mrs Georgina Hall “Working with families
13:50 Prof Andrew Webster “Investigating retinal disorders in the clinic”
14:10 Prof Paul Bishop (title TBC)
15:00 Breakout sessions:
1. Patient Experience - to diagnosis and beyond
2. Family/Friend/Carer Experience
3. Electronic Consent methods in visually impaired patients
16:00 Summary & Close
Getting to the Nowgen Centre
Our facilities are approximately one mile from Manchester Piccadilly and Oxford Road train stations, and less than 10 miles from Manchester International Airport, making The Nowgen Centre easily accessible by train, air, bus, car, or on foot.
Parking is available at the adjacent Grafton Street multi-story car park.
There will be vegetarian options. If you have more specific requirements please email Yvonne Kamieniecka (firstname.lastname@example.org) before February 25th.
The event is funded by NIHR Rare Diseases Translational Research Collaboration and made possible with support of Central Manchester University Hospitals NHS Foundation Trust