CRDN's RAREsummit21 is a platform for change.

It is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, the journey towards better diagnosis, treatment and support for patients and their families is smoother and more certain.

On 7th October 2021, we will hold our 5th RAREsummit – a flagship CRDN event gathering over 300 great minds in rare diseases to make connections, exchange ideas and openly debate possibilities. We'll be circling back to highlight the progress made over the last 5 years and looking forward to a vision for the next.

It's more than an event – it's where the magic happens.

Providing the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for future patient impact.

Through RAREsummit21, we aim:

• to raise awareness of rare conditions and their impact
• to showcase exemplars of impactful patient group collaboration with other stakeholders
• to bring all stakeholders in rare diseases together to drive patient group, researcher and industry partnering opportunities
• to give stakeholders the knowledge and skills to ensure their practices involve patients and their advocates as essential partners
• to improve the lives of rare disease patients, together, with greater efficiency, collaboration and success

The programme

The RAREsummit21 draft agenda is now live!! https://www.camraredisease.org/raresummit21-agenda

Sessions are a mix of panel discussions, fireside chats, short narrative film, workshops, talks with live Q&A:

LIVE SESSIONS

• Live Dragon's Den Rare Disease Innovation Challenge pitching
• Generation Genome: Circling back and looking forwards
• Amplifying the Patient Voice through Patient Voice Publications
• Rare Disease Health Information Delivered Well
• Can We Successfully Run Clinical Trials Without Placebos?
• Medicines Discovery for Rare Diseases with Astra Zeneca and Alexion
• Patient Group and Industry Partnering: What are the Right Ingrediets to Catalyse New Treatments?
• Rare Equity: addressing inequalities in rare diseases
• The story of UNRAVEL: Exploring the narrative of a patient group's growth and development through film

ON DEMAND CONTENT

• Early Access Programs: Collaborating, listening and educating effectively with patient groups
• Global Collaboration: Looking East. What are the opportunities for developing Rare Disease therapies in South Asia?

LIVE FACE TO FACE NETWORKING

• We'll be inviting attendees to switch their cameras on and drop into our REMO live networking after each two live sessions - meet the speakers you've just heard from, meet the CRDN teama nd meet eachother!

EXHIBITS & GALLERY

• Take timeout between live sessions to delve into the exhibition stands, visit the poster an film gallery and join the chat rooms

ALL CONTENT IS RECORDED AND AVAILABLE TO TICKETS HOLDERS FOR 30 DAYS

We have 50+ speakers from around the world. Visit the speaker gallery here ... https://www.camraredisease.org/raresummit21-speakers/

To keep updated on agenda news head to our website https://www.camraredisease.org/raresummit21

or sign up to our newsletter for regular summit news http://eepurl.com/duh0NH

WHY ATTEND? Learn something new, be inspired, meet people, add value, collaborate

• Build your global network through ours with 300+ biotechnology, pharma and start-up leaders, innovators, patients and patient group CEOs, healthcare professionals, policy-makers, CROs, researchers, investors and students assembled
• Meet, mingle and hold crucial discussions with potential partners from local and global arenas
• Take away practical strategies and fresh ideas to embed into your own work
• Hear from and put questions to key opinion leaders
• Take part in interactive workshops and watch Dragon's Den -style pitching sessions
• Visit exhibition stands and browse the gallery of patient journey posters and films
• All content live on 7th Oct and available on demand to ticket holders for 30 days following

We are proud of our forward-thinking and unique events which provide a forum for all stakeholders to learn, interact and collaborate, but don’t just take our word for it…

Get a flavour of what's to come

To get a flavour of what's to come, delve into live talks highlights from RAREsummit19, check out the event review and stats on our website or download a copy of our RAREsummit19 report here.

View a selection of some of the RAREsummit19 talks and testimonials below and for the full selection, visit our YouTube channel.