RAREsummit25

A Decade of Impact; A future of Possibilities

On Thursday 6 November 2025, we will gather at the Wellcome Genome Campus for our 7th RAREsummit – a flagship CamRARE event gathering 300 great minds in rare diseases to make connections, exchange ideas and openly debate possibilities.

CamRARE's RAREsummit25 welcomes and unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By reflecting on progress made, showcasing best practices and new developments, sharing knowledge and experience, and finding ways to work together, the journey towards better diagnosis, treatment and support for patients and their families is smoother and more certain.

Key themes include:

• CamRARE's new 5 year strategy launch
  
• Looking forward: The next decade of rare disease innovation
  
• Where are they now? Impact stories from RAREsummit alumni
  
• Research: RDRN Showcase: Patient-led research in action
  
• Community: Patient Storytelling: The power of personal experience
  
• Research: The future of genomics and rare diseases
  
• Navigating relationships and mental wellbing with a rare disease
  
• Women in Biotech & Leadership: Balancing Career, Family & Rare Disease Advocacy
  
• Funding Futures: Patient Innovation Pitches
  
• Climate Change & Rare Disease: An Emerging Crisis?

Why attend? Learn something new, be inspired, meet people, add value and collaborate.

• Build your network with 300 biotechnology, pharma and startup leaders, innovators, patients and patient group CEOs, healthcare professionals, policy-makers, CROs, researchers, investors and students assembled.
• Meet, mingle and hold crucial discussions with potential partners from local and global arenas.
• Take away practical strategies and fresh ideas.
• Hear from and put questions to key opinion leaders from the patient, scientific, industry, medical, and policy sectors.

Networking Dinner

As the sun sets on an inspiring day of bold ideas and promising connections, we invite you to gather for the grand finale.

Raise a glass to 10 years of CamRARE — a decade of driving change, championing collaboration, and giving voice to the rare disease community.

Enjoy a delicious three-course fine dining experience at Hinxton Hall, on the Wellcome Genome Campus, with a glass of wine or a soft drink on arrival and an opportunity to keep the conversations going!

Let’s toast to the past, the present, and the future we’re building together.

Get a flavour of what's to come

To get a flavour of what's to come, delve into live talks highlights from RAREsummit23, check out the event review and stats on our website or download a copy of our RAREsummit23 report here.