Scottish Parliament, Edinburgh - Tuesday 1st March, 6pm - 8pm

Scottish Parliament, Edinburgh - Tuesday 1st March, 6pm - 8pm

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Scottish Parliament Building

Edinburgh

EH99 1SP

United Kingdom

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Description

To mark international Rare Disease Day, Rare Disease UK will be hosting Parliamentary Receptions across the UK.


Our reception in Scotland, hosted by Malcolm Chisholm MSP (co-convener of the Cross Party Group on Rare Disease), will be taking place in the Scottish Parliament on Tuesday 1st March between 6pm and 8pm in the Garden Lobby of the Scottish Parliament.


Speakers include:
• Alastair Kent OBE, Chair of Rare Disease UK and Director of Genetic Alliance UK
• Shona Robison, Cabinet Secretary for Health and Wellbeing, Scottish Government
• Keith Swankie, a patient affected by progressive supranuclear palsy


Display boards will be available for patient groups to display posters. If you would like to display materials, please contact Natalie Frankish: natalie@geneticalliance.org.uk


Rare Disease Day provides the rare disease community across the world with the opportunity to increase awareness of rare diseases and highlight this public health priority to government and health departments. It is recognised in countries all around the world and 2016 marks the ninth year that the international rare disease community celebrates Rare Disease Day.