The Cambridge Rare Disease Showcase 2019

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Event Information

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Date and Time

Location

Location

Espresso Library

210 East Road

Cambridge

CB1 1BG

United Kingdom

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Refund Policy

Refund Policy

Refunds up to 30 days before event

Sales Have Ended

Ticket sales have ended
Registration for this event has now ended. If you have registered and are no longer able to attend, please contact maryrose@findacure.org.uk.
Event description

Description

Our Rare Disease Showcases are a celebration of innovative rare disease projects across the UK. As a world leader in rare research, exceptional examples of rare disease practice can be found all over the country. Our touring event series heads to local regions to give them the attention they deserve.

Join Findacure for the annual Cambridge Rare Disease Showcase – a relaxed and informal networking evening in one of the UK’s most prominent scientific hubs.

The event will take place on Thursday 8th August 18:45 – 21:00 at Espresso Library, Cambridge, and attendees can expect:

  • Quick-fire lightning talks proposed and delivered by registered delegates
  • Highlights of developments in the East of England
  • Opportunities to build relationships with passionate and dedicated members from all sectors of the rare disease community
  • Chances to make connections with representatives of Cambridge Biomedical Campus and Cambridge Unversity
  • Delicious canapes and refreshments

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Programme

18:45 - Registration

19:00 - Welcome and introduction to Findacure

From this point onwards, the evening will consist of open networking, complemented by six delegate proposed five-minute lightning talks.

The NIHR BioResource for Translational Research
Sofie Ashford Operations Lead, NIHR BioResource, University of Cambridge

Bridging the gap between rare disease and mental health
Katy Baker Vice President Welfare, Northampton Students Union

Targeting mitochondrial ROS in immunodeficiency
Dr Steve Webster Lecturer in Innate Immunity, University of Cambridge

Wearable devices and disease-specific mobile apps to deliver a better understanding of the impact of rare diseases on patients’ lives
Liam Eves Chief Business Officer, Aparito & Tony Hall Co-founder, Findacure

Idiopathic pulmonary fibrosis: priority setting for patient support and research
Stephen Jones Chair, Action for Pulmonary Fibrosis

Retention challenges: why patients drop-out
Dr Valeria Nicoli-Carr Global Director Patient Services, Patient Primary

20:55 - Closing remarks

21:00 - End of Showcase

Download the programme here

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Exhibition opportunities

If you are interested in corporate exhibition opportunities for our showcase series, please contact our Events Manager, Mary Rose, on maryrose@findacure.org.uk.

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With thanks to our sponsors

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We would like to thank our sponsors for providing financial support for this event. This event has been solely organised by Findacure and our sponsors have not determined the content or organisation. All funds received by pharmaceutical companies have been used in accordance with the ABPI code.

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Date and Time

Location

Espresso Library

210 East Road

Cambridge

CB1 1BG

United Kingdom

View Map

Refund Policy

Refunds up to 30 days before event

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