The Haemophilia Society Big Get-Together

Our Big Get-Together (BGT) annual conference in Northampton on Saturday 22 November is a chance to get together with people with bleeding disorders and their families to learn about new treatments and share experiences.

The BGT is a friendly, informal event which is free to all our members. Whether you’re recently diagnosed or have been living with a bleeding disorder for many years, you’ll find plenty of new information about your condition at BGT. You’ll also meet other people from around the UK with a bleeding disorder.

We’ll be joined by Ed Fuller, the star rower who won a gold medal with his crew at the Paralympic Games in Paris 2024, who lives with haemophilia. He will take part in a family-focused session on the importance of being active. There’s also an afternoon workshop for young people with bleeding disorders aged eight upwards.

We’ll have dedicated morning sessions for people with rare bleeding disorders, such as Glanzmann thrombasthenia and factor V deficiency, as well as workshops for people with VWD and haemophilia.

You will also get to choose which sessions you would like to sit in on:-

11:30 am – 12:30 pm

Infected Blood

Being Active / Getting The Most From Life

2:30 pm – 3:30 pm

Navigating Emergency Care

Ageing With Confidence

Most importantly, there are lots of breaks to talk to other people with a bleeding disorder about what matters to you. Lunch is included and we hope you’ll stay for drinks at the end of the conference to reflect on the day.

If you need more information, email info@haemophilia.org.uk

Other information

Parking

• Self-parking: £8.00 per day
• EV charging: On-site
• Blue Badge/Accessible Parking Bays
• The route from the car park to the entrance is accessible to a wheelchair user with assistance.

Hotel information

• Room Check-in 3 pm Check-out 12 pm
• The hotel has 139 rooms in total
• There are accessible rooms on the ground floor (please request this when booking).
• Main entrance - there is a ramp/slope on the approach.
• Room can be booked via the website - https://www.hilton.com/en/hotels/ormnohn-hilton-northampton/rooms/

The Hilton Northampton does not have any lifts. It has two floors (ground and top), and guests need to use stairs to access the top floor, including carrying luggage up two flights.

Pets

• Non-refundable fee: £35.00
• Max weight: 30 kg
• Max size: large

Pet policy: The hotel offers a pet experience. You may bring 2 pets per room (Excluding Superior and Suites). Dogs do not have access to internal Food Outlets.