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St Laurence's Church

37 Bromley Road

Catford

London

SE6 2TS

United Kingdom

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Event description
An evening of beautiful music raising funds to support life changing research aimed at treating hearing loss in the Norrie disease community

About this Event

International musicians: Klio Blonz / flute, Mairead Sheerin & Hilary Dolamore / voices and Helen Chenaf / piano, will be presenting an imaginative and exciting selection of works for the Norrie Disease Foundation Fundraising Concert. From the classical masters - Bach, Mozart, Schumann, Poulenc and Debussy - to Irish folk songs and jazz idioms , there are stories to be told, emotions to explore, journeys to take. Two voices, a flute and a piano, entwining and creating an enchanting web of colours and soundscape.

The Norrie Disease Foundation is a fledging charity set up in 2017 to support families affected by a very rare genetic condition Norrie disease. Norrie disease causes mainly boys to be born blind or severely sight impaired and most experience progressive hearing loss. There are around 40 families affected by Norrie in the UK.

The NDF is in an exciting partnership with Sparks Medical Research Charity and Great Ormond Street Hospital Children's Charity to take part in a national funding call to improve the treatment or quality of life of patients with Norrie disease, and particularly focusing on the Norrie disease progressive hearing loss.

Sound is incredibly important to those with a visual impairment, so developing an additional sensory loss in late childhood/early adulthood is particularly hard for the individual and can be very isolating. There is no cure for Norrie disease but being able to save the hearing would be life-changing for people affected by Norrie disease and their families.

The NDF has a target of £62,500 to raise by February 2020 which for a small, fledgling charity, solely run by volunteers is very ambitious but it gives the Norrie community hope.

Thank you very much for your support.

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Date and Time

Location

St Laurence's Church

37 Bromley Road

Catford

London

SE6 2TS

United Kingdom

View Map

Refund Policy

No Refunds

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