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Translational Research in Paediatric Rare Diseases Symposium

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The Henry Wellcome Auditorium

183 Euston Road

Wellcome Collection

London

NW1 2BE

United Kingdom

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A symposium, hosted by Great Ormond Street Hospital's Biomedical Research Centre (GOSH BRC), to bring together the national community of academic/researchers and other stakeholders to share experiences and discuss the unique challenges faced translating research into rare paediatric disorders into patient benefit. A draft programme will be added later this month (September).

Draft Programme:

1.00pm - 1.30pm Registration

1.30pm – 1.40pm Welcome and opening remarks. Professor Thomas Voit - GOSH BRC Director

1.40pm – 2.10pm Professor Nick Bishop - VP for Science and Research (RCPCH)

2.10pm – 2.30pm Emily Crossley - CEO Duchenne UK

2.30pm – 3.00pm Dr Karin Straathof - GOSH BRC Junior Faculty Chair introducing lightning talks from future leaders in the paediatric rare diseases community:

Dr Giovanna Lucchini - Locum Consultant Immunologist (GOSH)

Dr Sukhvir Wright - Research Fellow (Aston)

Dr Susan Campbell - Senior Lecturer (Sheffield Hallam)

3.00pm – 3.30pm Tea/Coffee and posters in the Williams Lounge

3.30pm – 4.00pm Professor Veronica Kinsler - Professor of Paediatric Dermatology and Dermatogenetics

4.00pm – 4.30pm Professor Pamela Kearns - Director Cancer Research UK Clinical Trials Unit

4.30pm – 5.15pm Panel Discussion

5.15pm – 5.30pm Closing Remarks. Professor Lucy Wedderburn - GOSH BRC Deputy Director

5.30pm – 7.00pm Drinks and canapes in the Williams Lounge

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Location

The Henry Wellcome Auditorium

183 Euston Road

Wellcome Collection

London

NW1 2BE

United Kingdom

View Map

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