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UK CF Registry Meeting 2017

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The Studio

7 Cannon Street

Birmingham

B2 5EP

United Kingdom

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UK CF Registry Meeting - 2017

The third annual UK CF Registry Meeting provides the ideal opportunity for all those who work with the UK Cystic Fibrosis Registry to understand and discuss new Registry tools and developments, and the impact of current research output.

Expert speakers from within the CF community will lead the morning’s plenary sessions, while the afternoon provides a choice of interactive and practical workshops that will focus upon the areas that apply most to your day-to-day work with the Registry.

Registration will open from 09.30, with the meeting commencing at 10.30 and will close by 16.00.

Plenary sessions will include:

  • Welcome and Introduction from the Cystic Fibrosis Trust
    10.30–10.45
    David Ramsden, Chief Executive, Cystic Fibrosis Trust

  • Annual Report Preview
    10.45–11.10
    Dr Siobhán Carr, UK CF Registry Chair and CF Paediatric Physician, Royal Brompton Hospital

  • Registry Team Update
    11:10–11:30
    Rebecca Cosgriff, Registry Lead, Cystic Fibrosis Trust

  • How good is your centre? The power of encounter based data and how to collect it
    11:30–12:00
    Dr Martin Wildman, Consultant Respiratory Medicine & and Adult CF, Northern General Hospital

  • Drug Safety Studies
    14:30–14.40
    Noreen Caine, UK CF Registry Consultant

  • Research Updates
    14:40–15:15
    TBC

  • Closing Remarks
    15:15–15:30
    Dr Siobhán Carr, UK CF Registry Chair and CF Paediatric Physician, Royal Brompton Hospital


Workshops (Please request a workshop space on booking):
13:00–14:20

Workshop A:
Dataset Enhancement
- An opportunity to discuss ways in which the data that are collected can be made more clinically relevant and useful for research.

Suitable for: Researchers, Clinical team members, Data managers

Dr Siobhán Carr, UK CF Registry Chair and CF Paediatric Physician, Royal Brompton Hospital & Rebecca Cosgriff, Registry Lead, Cystic Fibrosis Trust

Workshop B:
User training: CF START - Training provided by the CF START study team on recruitment, randomisation and data collection for this clinical trial

Suitable for: Clinical teams and data managers at paediatric sites open, or planning to open, CF START

Lynsey Finnetty, CF Registry Support Manager, CF Start

Workshop C:
User training: Data Quality
-
Tips and tricks for entering high quality data to the Registry, and avoiding queries after the data entry deadine

Suitable for: Data managers

Elaine Gunn, UK CF Registry Data Manager, Cystic Fibrosis Trust

Workshop D:
Getting the most out of the Registry at your site: querying/extracting data, reporting and analysis
- Instructions on how to interrogate your site’s Registry data using the query builder, export and dashboard functions

Suitable for: Clinical teams, Data managers

Annie Jeffery, UK CF Registry Development Manager, Cystic Fibrosis Trust


FAQs

What are my transport/parking options for getting to and from the event?

The venue is five minutes walk from Brimingham Central railway station, with NCP car parks available at Birmingham High Street and Grand Central.

What accommodation is available near the venue?

The venue is close to the Burlington Macdonald Hotel, Travel Lodge Birmingham and Premier Inn Birmingham.

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Date and Time

Location

The Studio

7 Cannon Street

Birmingham

B2 5EP

United Kingdom

View Map

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