Skip Main Navigation
Page Content

Save This Event

Event Saved

UK CF Registry Meeting - 2019

UK CF Registry Team

Tuesday, 2 July 2019 from 10:00 to 16:00 (BST)

UK CF Registry Meeting - 2019

Ticket Information

Type End Quantity
Conference registration 2 Jul 2019 Free  

Share UK CF Registry Meeting - 2019

Event Details

The annual UK CF Registry Meeting provides the ideal opportunity for all those who work with the UK Cystic Fibrosis Registry to understand new Registry tools, the use of its data and the impact of current research output.

Expert speakers from within the CF community will lead the morning’s plenary sessions, while the afternoon provides a choice of interactive and practical workshops that will focus upon the areas that apply most to your day-to-day work with the Registry.

Registration will open from 09.30, with the meeting commencing at 10.30. The meeting will close by 16.00.


  • Welcome & Introduction from the Cystic Fibrosis Trust 

  • Annual Report Preview 

  • Registry Team Update 

  • Registry-based Research Overview

  • Lunch & Networking 

  • Workshops (see below) 

  • The French CF Registry- How it works, challenges and successes 

   Lydie Lemonnier, French Registry Manager

  • Using Registry for QI: Lessons from the French QIP experience 

   Dominique Bertrand, Coordinator of the French CF QIP

  • Measuring change: Data tools for Quality Improvement  -
    15:00 –15:25

   Tracy Turc-Milloy, Clinical Quality Improvement Manager

  • Closing Remarks 

  • Close of Meeting & Refreshments
    15.30 - 16.00

AFTERNOON WORKSHOPS (Please request a workshop space when registering):

Workshop A: Using the registry data to understand the CF population. 

Suitable for: Dig deeper into the annual data, at national and centre level, so you can understand the patient population better and make the most of the report for your work. There will be an opportunity to ask team any burning statistics or CF registry data  questions. 

Suitable for : anyone who is interested in improving their understanding of the CF Registry annual report data and the patient population,   involved data entry /admin/ or uses the data for research or clinical audit.

Susan Charman, Senior Statistician, Tracy Turc-Milloy, Clinical Quality improvement manager

Workshop B: Getting the most out of the Registry software

Learn about the latest updates the UK CF Registry software and take the opportunity to provide feedback to the development team.

Suitable for: Anyone who uses the UK CF Registry to enter data or generate reports.

Mary Yip, Development Manager, Kieran Earlam, Registry Coordinator

Workshop C: Improving Data Quality

Develop your understanding of how to enter the highest quality data to the Registry, and minimise those queries at year-end!

Suitable for: Anyone who enters data onto the UK CF Registry.

Elaine Gunn, UK CF Registry Data Manager

Workshop D: Registry Journal Club

Discuss a selection of Registry-based publications from the last year, and put forward suggestions for future research themes.

Suitable for: Clinical team members, Researchers.

Steve Cunningham, Consultant Respiratory Paediatrician, Caroline Elston, Adult CF Physician


What are my transport/parking options for getting to and from the event?

The venue is five minutes walk from Brimingham Central railway station, with NCP car parks available at Birmingham High Street and Grand Central

What accommodation is available near the venue?

The venue is close to the Burlington Macdonald Hotel, Travel Lodge Birmingham and Premier Inn Birmingham.

Access to the Venue?

If you are disabled or have any other accessibilty requirements please contact so we can make arrangements for you.

Do you have questions about UK CF Registry Meeting - 2019? Contact UK CF Registry Team

Save This Event

Event Saved

When & Where

The Studio
7 Cannon Street
B2 5EP Birmingham
United Kingdom

Tuesday, 2 July 2019 from 10:00 to 16:00 (BST)

  Add to my calendar

Interested in hosting your own event?

Join millions of people on Eventbrite.

Please log in or sign up

In order to purchase these tickets in installments, you'll need an Eventbrite account. Log in or sign up for a free account to continue.