UK Cystic Fibrosis Conference 2017 - Day Two

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East Midlands Conference Centre

Beeston Lane



United Kingdom

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UKCFC 2017

'Clinical Trials and Increasing Access for People with Cystic Fibrosis'

Day Two: Thursday 7th September 2017

Day Two is designed for all those with either a personal or professional interest in cystic fibrosis.

09.00 Registration & networking

10.00 Welcome to Day Two
David Ramsden, CEO, Cystic Fibrosis Trust

10.05 Session One: Clinical Trials: Where are we now?
Chairman: Dr Damian Downey,
Consultant Respiratory Physician, Queens University Belfast

Clinical Trials: What and Why?

10.15 Keynote: Future CF Therapies: They Depend on All of Us
- The increased number of trials in the next year - and the impact
George Retsch-Bogart, University of North Carolina

11.00 Clinical Trials Accelerator Platform
Rebecca Brendell, Head of Clinical Trials Accelerator Platform, Cystic Fibrosis Trust

11.15 Coffee & Networking

11.30 Session Two: Clinical Trials: What's coming down the line?

Clinical Trial challenges in the age of personalized medicine: Industry perspective
David Geller, Medical Director CF, Abbvie

12.00 The challenge of Personalised / Precision Medicine in the design of clinical trials

12.30 Forum: carer and people with cystic fibrosis perspectives

  • What is the experience of people who have taken part in clinical trials?

13.00 Conference Lunch & Networking

14.00 Session Three: 'A Year in the Life of the Cystic Fibrosis Trust'

Meet the Trust: our successes and challenges in 2017 in the fight for a life unlimited for all those with CF.

15.00 Session Four: Afternoon Workshops:

A. Clinical Psychology
'Using Psychology to support Children and Young People with CF to Thrive
Dr James Lemon, Consultant Clinical Psychologist, NHS

B. Nutrition
Nutritional Assessment
Darren Sills, Lead Adult Cystic Fibrosis Dietitian
Wolfson Adult CF Unit - Nottingham University Hospital Trust

C. Physiotherapy
Clinical Exercise Testing and Prescription
Professor Craig Williams, Director: Children's Health & Exercise Research Centre
University of Exeter

D. Pharmacy
‘Access to new Medicines – Pipelines to Patients’
Patrick Wilson
Assistant Head of Pharmacy: Clinical and Operational Services
Pharmacy Department - Nottingham University Hospitals

E. CF Centre Directors (closed meeting)

16.30 Close of Conference


Is the conference for all those with an interest in cystic fibrosis?

Day Two is designed for all those with either a personal or professional interest in cystic fibrosis.

Day One (separately bookable) is designed specifically for a professional clinical, research and academic audience only.

Is the conference open to people with cystic fibrosis?

As meetings and conferences are places where cross-infection could occur, the conference is not open to registration for people with cystic fibrosis.

Instead, we will be offering on-line attendance through live streaming, digital forums and social media to enable people with cystic fibrosis to view all of the conference sessions and interact safely.

What are my transport / parking options getting to the event?

The nearest stations to the EMCC are Beeston Station and Nottingham. There are over 30 direct trains that travel between St Pancras and Nottingham on a daily basis.

There is parking space for 250 cars at the venue. The EMCC is situated on Beeston Road, which is the main loop road through the campus. For satellite navigations systems please use postcode NG7 2QL.

What are my choices for accommodation near the conference?

The conference venue is situated next to the Orchard Hotel - which will provide accommodation for many of those attending the event.

Alternative accommodation can also be found at Holiday Inn Castle Marina, the Village Nottingham and Jury’s Inn.

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East Midlands Conference Centre

Beeston Lane



United Kingdom

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