Free

UK Marfan Meeting 2018

Event Information

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Location

Location

Heartbeat Education Centre

Southampton General Hospital, SO16 6YD

Tremona Road

Southampton

SO16 6YD

United Kingdom

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Event description

Description

Join us for an informative, supportive and friendly meeting of those affected by Marfans Syndrome, including parents/spouses/caregivers. Attendees must be aged 13 and up, due to room restrictions and our inability to provide childcare.

The day will include talks by cardiovascular geneticist Dr Anne Child of St George's Hospital, cardiac geneticist Dr Catherine Mercer of Southampton General, and a cardiologist. In the afternoon, we will break into smaller facilitated groups so that people have a chance to share and get to know each other.

The four groups will be:
Adults with Marfans
Teens with Marfans
Young Adults 20 - 40 with Marfans
Parents, spouses, family members and caregivers of those with Marfans

The Marfan Trust will be on hand with information and brochures.

Refreshments will provided due to the kind sponsorship of fellow Marf Jim Berrisford!

Lunch can be purchased from a number of food outlets, including an M&S cafe and food hall, in the hospital.

Children: We know that it is disappointing to some that children cannot attend. We hope that parents of children affected by Marfans will attend and have a chance to meet other parents, which could lead to more casual family get-togethers. Also, The Marfan Trust will provide details of their next Family Fun Day at the meeting.

Time:
9:30 Arrivals, Coffee and Tea
10:00 Start
lunch break
4:00 End


Venue:
Heartbeat Education Centre, located within the Southampton General Hospital
F Level, North Wing

DIRECTIONS

The venue is fully accessible.

Parking:
There are multiple car parks. The Orange car park is the main car park.
Parking for the full day is £7. I am trying to get a reduction in this charge for our group, but may not be successful, so please come prepared to pay this amount.

FAQs

How can I contact the organiser with any questions?

Please email sara.gangai@gmail.com

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Date and Time

Location

Heartbeat Education Centre

Southampton General Hospital, SO16 6YD

Tremona Road

Southampton

SO16 6YD

United Kingdom

View Map

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