What Matters To YOU At The End - Planning for the future - Day Two

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What Matters To YOU At The End - Planning for the Future - Day Two

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‘What Matters To YOU At The End?’


Day Two – Thursday 13th of May 2021

14:00 Welcome and introductions and the value of Social Prescribing in End-of-Life Planning Chair - Nikki Kelly, Community Connect

2:05 Patient perspective of completing an Advance Care Plan - Clair Fisher, Dying Well

Clair Fisher is a Public Policy Professional and Associate of the What Works Centre for Wellbeing who was diagnosed with stage 4 bowel cancer in 2018. Her retirement project ( aims to develop and share evidence around Wellbeing and Terminal illness. Clair is an advocate for early intervention palliative and hospice care and has a powerful story of the wellbeing benefits of planning ahead. Clair will be sharing the often-unheard patient perspective of completing an Advance Care Plan.

2:30 Enabling Choices in challenging circumstances - Sam Facey

Sam Facey is a palliative care nurse who worked for the Cornwall drug and alcohol team as a home detox nurse. Currently she is working as an Improving Access coordinator for St Austell Health Hub, a collaboration of St Austell based GP’s to form one Primary Care Network (PCN) with Mount Edgcumbe Hospice, their aim is to improve access into palliative care for homeless people with complex needs. This project has been running since September 2020 and hopes to be able to evidence improvements for disadvantaged local people.

2:45 Cornwall Hospice Care Therapy Team - What Matters on discharge

The Hospice Therapy Team strive to take a person-centred approach to the discharge needs of those going home from the hospice. Occupational Therapists Chloe Marshall & Emma Wilton explain how they make 'what Matters Most' to the patient their top priority.

3pm The role of faith and spirituality when planning for end of life - Revd Mark Richards (B.Th.)

Revd. Mark Richards is the Lead for Spiritual and Pastoral Care and Voluntary at the Royal Cornwall Hospitals Trust for the past 11 years and loves his job. He is the facilitator for the South West Healthcare Chaplains Collaborative and a member of the College of Healthcare Chaplains Profession Committee. He is passionate about providing outstanding care at the end of life.

3:15 End of Life Doulas - Aly Dickinson

Aly Dickinson is the Director of End-of-Life Doula UK and a practising doula based in Devon. She trained with Living Well Dying Well after years of working in HR, has volunteered in local hospices and works out and about in the community as a doula and raising awareness of all things death and dying related. Aly facilitates community events such as end of life planning, funeral planning, death cafes, information sessions and Bereavement Cafes.

3:30 Plenary - Changing the public conversation around death and loss: Good Grief Festival -Lucy Selman

Lucy Selman is the founding director of The Good Grief Festival & Senior Research Fellow in the School of Population Health Sciences, University of Bristol. Her research and publications over the past 15 years have mainly focused on psychosocial and spiritual aspects of the illness experience; decision-making and communication; family care-giving and bereavement; and widening access to services.

3:55 Q & A’s, thankyous and closing comments

4pm Close

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