The All-Party Parliamentary Group on Data Analytics and the All-Party Parliamentary Health Group are delighted to host a parliamentary symposium to brief policy makers on the findings of Foundations of Fairness: what next for health data partnerships?, a landmark report by Understanding Patient Data at the Wellcome Trust in partnership with the Ada Lovelace Institute.
The event will take place on Thursday 28th October from 10:00pm until 12:00pm and will be chaired by the Rt Hon the Lord Hunt of King’s Heath, former Chief Executive of the NHS Confederation.
Following a presentation by the report authors, we will have a number of discussant responses from across the health, data and patient sectors. This will then be followed by an open Q&A from members of the audience.
Speakers include:
- Dr Natalie Banner: Lead, Understanding Patient Data
- Dr Murat Soncul: Head of Privacy and Data Protection, Cabinet Office, Government Digital Service
- Chris Carrigan: Associate Member, useMYdata
- Pauline L'Hénaff: Senior Consultant, Open Data Institute
- Simon Madden: Director of Policy & Strategy, NHSX
This symposium will provide an opportunity to hear what the public believe constitutes a fair value exchange between NHS organisations and third parties that access health data.
It will also provide an opportunity to discuss other relevant areas of public policy, including:
- The forthcoming Data Strategy for Health and Social Care announced within the National Data Strategy by Oliver Dowden, Secretary of State for Digital, Culture, Media and Sport in September 2020
- The development of a Centre of Expertise within NHSX which is tasked with advising NHS organisations on how to enter into third party data partnerships.
- The Office for Life Sciences Data Framework, which is designed to align how NHS data partnership are formed with public expectations.
- The Health Data Research UK’s Health Data Research Hubs and its own emerging commercial framework.
To join the event - please use the following link.
