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York Regional Parents Event

Cystic Fibrosis Trust Conferences

Wednesday, 26 March 2014 from 19:00 to 21:30 (GMT)

York Regional Parents Event

Ticket Information

Type End Quantity
Parents   more info Ended Free  

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Event Details

07.00 pm  Registration, tea and coffee

07.15 pm  Welcome and introduction 
Ed Owen, Chief Executive, Cystic Fibrosis Trust   

In this opening introduction, Ed Owen, the Trust’s Chief Executive Officer, will outline
the organisation’s strategy and will look at:

  • How the Cystic Fibrosis Trust can become the champion of people with CF in government so that new treatments will get to clinics
  • Creating new forms of support to help people with the day-to-day challenges of living with cystic fibrosis


07.25pm  Driving the research agenda
Janet Allen, Director of Research, Cystic Fibrosis Trust

  • Looking at the elements of the Cystic Fibrosis Trust's Research Strategy
  • Examining how research is at the centre of the Trust's strategic initiatives


08.00 pm  Update on current issues in Cystic Fibrosis treatment and care
Local clinician or researcher

  • Update on the current research in cystic fibrosis treatment and care
  • Looking at local cystic fibrosis activity to see what clinical work has been going on in your region


08.25 pm  Questions and answers
An extended Q&A session with the Directors of the Cystic Fibrosis Trust. We welcome your views and suggestions about the focus of our work: the feedback from this session will be collated and delegates will receive email updates after the event to explain how their comments and suggestions have been used to help shape our strategic objectives and areas of focus in the upcoming years.


09.00 pm  How can you get involved 
Dr Matthew Sowemimo, Director of Policy and Communications, Cystic Fibrosis Trust
Regional Fundraising Manager, Cystic Fibrosis Trust

  • Examining how grassroots campaigners can make the difference to the Trust's campaigns 
  • How you fan get involved in our 2014 fundraising activity and campaigning work
  • Where to go for advice, information and support
  • How we will stay in tough with you about developments in the Trust’s work


9.15 pm  Closing comments
Ed Owen, Chief Executive, Cystic Fibrosis Trust 


In accordance with the Cystic Fibrosis Trust policy on cross-infection, we cannot allow people with cystic fibrosis to attend this meeting in person. However, if you would like to have your say or to ask a question to the Trust's senior management then email: and we will address your point at the event and also respond directly by email to your specific concerns, points or questions.



Do you have questions about York Regional Parents Event? Contact Cystic Fibrosis Trust Conferences

When & Where

National Railway Museum
Leeman Road
Y026 4XJ York
United Kingdom

Wednesday, 26 March 2014 from 19:00 to 21:30 (GMT)

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Cystic Fibrosis Trust Conferences

Cystic Fibrosis Trust Conferences is the events arm of the Cystic Fibrosis Trust - the UK's only national charity dedicated to all aspects of cystic fibrosis (CF).

  Contact the Organiser

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