If you have been affected by cancer then your records could help with life saving research. Join us at an event in Cambridge on 19th November 2013 to find out more and have your say on how those affected by cancer are informed about the collection and use of their information.
- There is no cost to attend but we only have limited spaces so please book early. We will provide lunch and pay reasonable travel expenses.
- We’ll let you know more about the event, how to get there and how to claim travel expenses nearer the time.
We’ve made great strides in recent years in our understanding of what causes cancer and how best to diagnose and treat it. But we can only continue this progress if we have information about the people who are developing cancer. We collect this information through a process called cancer registration.
When someone is diagnosed with cancer, or a condition that can lead to cancer, the medical staff looking after their health will pass information about them on to the National Cancer Registration Service. We need cancer registration data to monitor cancer rates, evaluate cancer care, and enable research into the causes and treatment of cancer. The registry has to contain information on as many cancer patients as possible, so that it gives an accurate reflection of cancer rates and the effectiveness of cancer care in the UK.
It’s important that cancer patients are aware that their data are being collected and used in this way. Cancer Research UK and Public Health England are inviting people affected by cancer to an event at the headquarters of the National Cancer Registration Service in Cambridge. This will be a chance to learn more about cancer registration as well as to have your say on how cancer patients are informed that this is happening. There will also be an opportunity to comment on a new initiative to give cancer patients online access to their own records.
When & Where
Cancer Research UK
Cancer Research UK pioneers life-saving research to bring forward the day when all cancers are cured. We do this through our world-class research into over 200 types of cancer, all of which is entirely funded by our supporters.
But we don't just do research – every year we help millions of people by providing information for patients, health professionals and the public. We also push hard for positive changes in public policy and legislation, helping to keep cancer at the top of the health agenda and bring benefit to cancer patients.