Language, Informed Consent and Inclusivity in Medical Research and Practice

Zsofia Demjen

The UCL Centre for Applied Linguistics &amp; IC4CH invite you to ‘Language, Informed Consent, and Inclusivity in Medical Research and Practice'

It is well-established that certain groups – for example poorer, immigrant, indigenous, and ethnic minority communities – in the population are under-recruited in clinical trials and their health needs underrepresented in medical research and practice. This has been particularly highlighted over the last two pandemic years. The reasons for this inequality are complex and systemic, but one element is the linguistic and cultural competence of patients and clinicians: from the demands of explaining and understanding complex information, to how (perceived) language ability is used to in/exclude. These problems are particularly salient in multicultural societies around the world, such as Hong Kong, Australia and the UK.In this webinar, experts from Hong Kong, Australia and the UK will discuss some of the linguistic issues around inclusion and informed consent in medical research and practice and how these manifest in specific examples from Hong Kong, Australia and the UK. We will touch on <ul><li>the language demands of informed consent documents in medical trials</li><li>informed consent-in-interaction in multicultural genetic counselling consultations involving minors</li><li>the translation of informed consent documents into multiple languages</li><li>the impact of the ‘must speak English’ criterion on recruitment to medical trials</li><li>the inadvertent exclusion of target groups from medical research</li></ul>The panel discussion will be followed by discussions with our audience where we hope to gain further insights into related concerns and possible solutions from around the world. Chair: Prof. <a href="https://iris.ucl.ac.uk/iris/browse/profile?upi=LMNOB86" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Lorraine Noble</a>, University College LondonSpeakers:Dr <a href="https://iris.ucl.ac.uk/iris/browse/profile?upi=ZDEMJ97" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Zsofia Demjen</a>, University College LondonDr <a href="https://iris.ucl.ac.uk/iris/browse/profile?upi=TISAA83" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Talia Isaacs</a>, University College LondonProf. <a href="https://researchers.anu.edu.au/researchers/phillips-cb" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Christine Phillips</a>, Australian National UniversityDr <a href="https://english.hku.hk/staff/zayts/index.html" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Olga Zayts</a>, University of Hong KongA link to the event will be sent to all registered participants a few days before the webinar. Automatic captions will be available. Due to the potential sensitivity of the topic, the event will not be recorded.The <a href="https://www.ucl.ac.uk/ioe/departments-and-centres/centres/centre-applied-linguistics" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">UCL Centre for Applied Linguistics</a> is a partner in the <a href="https://slll.cass.anu.edu.au/centres/ich/international-consortium-communication-health-care" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">International Consortium for Communication in Healthcare (IC4CH)</a>, an international, interdisciplinary collaborative dedicated to translating cutting-edge research into best practice and training for safe and compassionate health care. Other IC4CH member organisations are the Australian National University, Nanyang Technological University, Lancaster University, the University of Hong Kong and Queensland University of Technology.  For information about UCL's privacy practices and how UCL uses your data, please see the <a href="https://www.ucl.ac.uk/legal-services/privacy/general-privacy-notice" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">UCL General Privacy Notice</a>.

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Language, Informed Consent and Inclusivity in Medical Research and Practice

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