Advanced Heart Failure Online Support Group - Friday 17th September

Our vision is for everyone affected by cardiomyopathy to lead long and fulfilling lives. We are the specialist national charity for people affected by cardiomyopathy. We provide support and information services, work to raise awareness of the condition, campaign for better access to quality treatment and promote research.How we use your information.  All personal information given to Cardiomyopathy UK is only held and used in accordance with the Data Protection Act 2018. We do not share our mailing lists...

Cardiomyopathy UK

Advanced Heart Failure Online Support Group

Hosted by Cardiomyopathy UK Support Nurse Caryl Evans and Cardiomyopathy UK Trustee Stephen Kirkham, this session is for anyone over 18 years of age with advanced heart failure/on the transplant list/transplanted. Many of those diagnosed with cardiomyopathy live very full and active lives. Realistically though, some will experience heart failure, and a smaller number go on to develop advanced heart failure. Wherever you are on such a journey, a holistic and personalised assessment is required and up- titrating your medications and a possible device implant can help. However, a smaller number will need to go on to be considered for a heart transplant and when the time is right - not too soon, nor too late - for the Transplant Waiting List. This new Zoom group is for anyone with advanced heart failure who might in time be approaching the need for transplant, for people already on the list, and for those who have made the journey through to transplant. It means we have an opportunity to have a thoughtful chat and share our own journey, doing so over coffee. We want to provide a welcoming and supportive environment and to hear where you are in the process, for you to share your concerns, and so we can learn together from each other’s experiences. We have CM UK’s Support Nurse Caryl to add her clinical viewpoint, as we seek to support and encourage each other along the way.The session will take place using Zoom - a link and password will be sent to you prior to the meeting date.If you have any questions, please email the charity's Community Peer Support Manager: christie.jones@cardiomyopathy.org.

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Advanced Heart Failure Online Support Group - Friday 17th September

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Advanced Heart Failure Online Support Group - Friday 17th September

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