Rare Disease Day 2026 Joint Nation Online Event

Genetic Alliance UK works with organisations and individuals to ensure that the needs and preferences of all people affected by genetic, rare and undiagnosed conditions are recognised, understood and met.

Genetic Alliance UK

Join the community in coming together to raise awareness for Rare Disease Day.

Genetic Alliance UK are excited to be hosting a Joint Nation Online Event for Rare Disease Day 2026! Rare Disease Day is an annual international day aimed at raising awareness and highlighting the needs of people with rare conditions.The community will be coming together to recognise the day with health professionals, policymakers, researchers, people affected by rare conditions and support organisations from across all four nations in the UK.We will be hearing from people with rare conditions and leading policy-makers.People from across the UK are welcome to register for the event.If you have any queries, please email rarediseaseday@geneticalliance.org.uk.This Rare Disease Day event is run by Genetic Alliance UK as part of our nationwide Rare Disease UK campaign.All of our information, policy and campaign events are completely free to attend. However, any donation, no matter what size, will help us to continue our mission to ensure that people and families living with rare, genetic or undiagnosed conditions have access to a final diagnosis, coordinated care and specialist care and treatment.<a href="http://www.geneticalliance.org.uk/donate" title="http://www.geneticalliance.org.uk/donate" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">www.geneticalliance.org.uk/donate</a> Genetic Alliance UK <a href="https://geneticalliance.org.uk/policies/privacy-policy/?gclid=Cj0KCQiAxoiQBhCRARIsAPsvo-xdGiHAxKHTUJ0GBqtmeqwKRCROFNCBD0L361CuGsKJkpri6VZVv48aAnGREALw_wcB" title="https://geneticalliance.org.uk/policies/privacy-policy/?gclid=Cj0KCQiAxoiQBhCRARIsAPsvo-xdGiHAxKHTUJ0GBqtmeqwKRCROFNCBD0L361CuGsKJkpri6VZVv48aAnGREALw_wcB" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">privacy policy.</a>

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Rare Disease Day 2026 Joint Nation Online Event

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