Data Access and Discovery - February

Health Data Research UK (HDR UK) is the national institute for health data with a mission to unite the UK’s health data to enable discoveries that improve people’s lives. It is a charity funded by UK Research and Innovation, the Department of Health and Social Care in England and equivalents in Northern Ireland, Wales and Scotland, and leading medical research charities.

Health Data Research UK (HDR UK)

Come join us at our first Data Access and Discovery bi-monthly event!

Data Use Registers are a key component of improving transparency and trust in the use of health data for research - they allow patients and members of the public to see and feel confident in how patient data is being requested. They can also very useful for researchers and funders to see what datasets have been made available for research.Until now there have not been any standards for Data Use Registers, making them difficult to access, navigate and review. To address this issue and in our role as the national institute for health data science, the UK Health Data Research Alliance (The Alliance) has created the first set of recommended standards for Data Use Registers. <a href="https://ukhealthdata.org/news/setting-the-standards-for-transparency-in-the-use-of-health-data/" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Read more</a> about these new standards and <a href="https://zenodo.org/record/5902743" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">download </a>the paper.Alongside the publication of this key White Paper, we are also developing a new tool for data custodians to manage their Data Use Registers on the HDR Innovation Gateway.Find out more at our first &quot;Data Discovery and Access&quot; session of 2022.

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Data Access and Discovery - February

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Data Access and Discovery - February

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