Sickle Cell Society Feedback Sessions - Birmingham SC patients

The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life. First set up as a registered charity in 1979, the Sickle Cell Society has been working alongside health care professionals, parents, and people living with sickle cell to raise awareness of the disorder. The Society’s aim is to support those living with sickle cell, empowering them to achieve their full potential. To find out more visitwww.sicklecellsociety.orgor on Twitter, Facebook or Instagram: @SickleCellUK

Sickle Cell Society

Users of City Hospital and Birmingham Children’s Hospital for sickle cell care - we really want to hear your views on the service.

Invitation to join a meeting to provide feedbackTuesday 14th May :4.30 pm booking time : for children , young people and families5pm booking time: for adults The Sickle Cell Society and UK Thalassaemia Society are supporting the UK Forum for Haemoglobin Disorders Review Programme.This means that we are collecting patient feedback on sickle cell services at different hospital locations, to feed into reviews of the service people receive. You can be frank with your views and we will provide a report at the end which does not identify the contributors.A West Midlands review visit to City Hospital and Birmingham Children’s Hospital is taking place later in May. The purpose of the review is part of a plan to improve care for people with haemoglobin disorders/ Sickle Cell Disorder/ Thalassaemia and Rare Inherited Anaemias.A team of patients, carers and healthcare professionals will look at the care offered by your local service and identify things that are working well and areas where improvements could be made.Before the visit, we would like to hold an online meeting on Tuesday May 14th with patients and carers. The meeting will last about an hour. For the first 30 minutes we would like to meet with children, young people and their families, and for the second 30 minutes with adults.A representative from the Sickle Cell Society, user and carer reviewers will lead the meeting and a representative from the Midlands and Lancashire Commissioning Support Unit (who are facilitating the review programme) will also attend but only to provide support to the meeting and take notes.Reviewers will see some information during the visits but will be interested in exploring issues with you about your general experience of care, how you access services and the process for user and carer feedback. We will also ask about information and support that is available for you, how care is planned and monitored, and arrangements for ‘self-care’.In particular, we would like patients/families to share: <ul><li>Their experience of the quality of services they receive</li><li>How well they are involved or engaged about issues regarding their care</li><li>The support they receive from healthcare professionals and other members of the team</li><li>Any specific service positives and not so positive</li></ul>The review team will draw its conclusions from multiple sources and the reports will not identify individuals’ comments.The purpose of this meeting is to gather feedback, and will help to improve the care that your local service offers. Your ideas and suggestions may help people in other areas as well.

Attendance is free, by Microsoft Teams. Please book a ticket so we are aware of numbers :<h3>Tuesday 14th May 4.30pm -5.00 pm - Children, young people and their families</h3><h3>Tuesday 14th May 5.00pm - 5.30pm - Adults</h3>Meeting links will be sent to you when you book.

Our {communityGuidelinesLink} describe the sort of content we prohibit on Eventbrite. If you suspect an event may be in violation, you can report it to us so we can investigate.

To report other categories of prohibited or illegal content, submit {link}

Sickle Cell Society Feedback Sessions - Birmingham SC patients

More events from Sickle Cell Society

Discover more events from Sickle Cell Society, from Health to other experiences you might love.

Still looking for the right event?

Explore all online events to browse and filter by date, category, and more.

Sickle Cell Society Feedback Sessions - Birmingham SC patients

More events from Sickle Cell Society

Discover more events from Sickle Cell Society, from Health to other experiences you might love.

More Health events

Browse more Health events with different dates, prices, and formats to find your next great experience.

Still looking for the right event?

Explore all online events to browse and filter by date, category, and more.