Addressing Parkinson’s with Black communities in the UK

Addressing Parkinson’s with Black communities in the UK

Families from Black African and Caribbean backgrounds are invited to a supportive new online event series about living with Parkinson's

By Parkinson's UK

Location

Online

Agenda

Wednesday 8 May
Saturday 11 May

12:00 PM - 12:10 PM

Welcome

Alex Edwards, Parkinson's UK

12:10 PM - 12:40 PM

Panel discussion: Experiences of Parkinson’s in Black communities

Mary Naa Kwartsoo Quartey-Papafio, Toussaint Smith and Jacqueline Reid share their experiences of being affected by Parkinson's

12:40 PM - 1:00 PM

Break and opportunity to chat with others

1:00 PM - 1:30 PM

Living well with Parkinson’s: Advice from the experts

Miriam Parry, Parkinson's Disease Nurse Consultant

● General guidance for managing symptoms ● Medication and side effects ● Caring for someone with Parkinson’s ● Aids and adaptations ● Complementary therapies ● 10 minute question and answers

1:30 PM - 1:45 PM

Break and opportunity to chat with others

1:45 PM - 2:15 PM

Genetics Research and Parkinson's

Dr Mie Rizig, Neurologist and Clinical Researcher

● What is research? ● Genetics and Parkinson’s ● Importance of genetics research for Black Parkinson’s communities ● Introduction to the Research Support Network ● 10 minute question and answers

2:15 PM - 2:30 PM

Break and opportunity to chat with others

2:30 PM - 3:00 PM

Support on offer from Parkinson’s UK

Tom Lee, Parkinson’s UK Helpline Adviser

3:00 PM - 3:30 PM

Try out a Parkinson’s exercise class

Anna Kharin, Neuroheroes

3:30 PM - 4:00 PM

Event close

Alex Edwards, Parkinson's UK

About this event

  • 2 days 16 hours

Whether you are a person with Parkinson’s or know someone who is, join the community for these free, informal information days to share experiences, create connections and access information.


These events will take place on:

  • Wednesday 8 May from 12 pm to 4pm
  • Saturday 11 May from 12pm to 4:15pm

There will be different topics and speakers on each day so please join us for both days if you can!

Can't come for the whole day or both days? No worries, just join the online meeting link whenever suits you.


What's happening at the events?

These free events will offer advice about living with Parkinson’s and help connect you to support and others in the community.

  • Connect with other people living well with Parkinson's
  • Chat with advisers from Parkinson's UK who support people with Parkinson’s and their families in multiple languages
  • Meet specialists and healthcare professionals who provide support and care
  • Learn about activities that help people with Parkinson’s to live well and manage their symptoms
  • Find out how taking part in research could help to find more effective treatments for you and your community


There will be different speakers and topics on each day:


These events welcome everyone but we particularly encourage those from Black, Asian and minority ethnic backgrounds to attend, as your experience is often under-represented in the Parkinson’s UK community and is crucial to fully understanding the condition.

These events are being planned and delivered in partnership with a group of people affected by Parkinson's from Black African and Caribbean backgrounds and are part of Parkinson's UK's Race Equality in Research Project. Find out more here.


Any questions?

If you have any questions about this event, please contact Alex Edwards from Parkinson’s UK at aedwards@parkinsons.org.uk or 020 7963 9384. Please leave a voicemail if we don't pick up the phone straight away.


Further support for people affected by Parkinson's

If you or someone you know has questions about living with Parkinson’s or needs support, you can contact the Parkinson’s UK helpline on 0808 800 0303 or hello@parkinsons.org.uk.

Tickets

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Organized by

Parkinson's UK