Best practices in PPIE for health data science

PPIE is rapidly becoming a pivotal component of any grant application, with many funders now explicitly requiring Patient and Public Involvement and Engagement (PPIE), including the NIHR, Wellcome, and UKRI amongst others.

This event aims to equip you with the knowledge and inspiration to integrate PPIE into your own research practices. Don't miss this opportunity to learn from experts and engage in meaningful discussions about the future of health data science.

Schedule

• 11.00-11.10 – Welcome
• 11.10-11.40 – Sue Pavitt
• 11.40-11.50 - Q&A
• 11.50-12.00 – Break
• 12.00-12.15 – Why PPIE matters in research? Perspective from a PPIE participant Samina Begum
• 12.15-12.20 – Q&A
• 12.20-12.40 – Lunch
• 12.40-13.20 – Does patient and public involvement and engagement matter in statistical methodology research? Jonathan Broomfield
• 13.20-13.30 – Q&A
• 13.30-14.00 – Workshop – design your PPIE activity + networking

Speakers

Professor Sue Pavitt: Sue is a Professor of Translational and Applied Health Research at the University of Leeds. She is a valued science communicator and ambassador for Patient, Public Involvement, Engagement and Participation (PPIE) in research. She co-chairs the SMILE AIDER PPIE Forum supporting delivery of patient-centred research, “No research about us, without us”.

Samina Begum: Samina became interested in health research through her experience of living with a health condition. Her career background was in Mental Health working in both the statutory and voluntary sector. This gave her an insight into health inequalities for marginalised groups and advocated for them in society. She is an executive group member for use MY data, and involved or connected with a number of organisations such as the Cancer Research UK (CRUK) Inclusion in Involvement Steering Group, Open Safely- PPI Advisory Group on Governance, and others.

Dr. Johnathan Broomfield: Dr Jonny Broomfield is a researcher at the University of Leicester based in the Departments of Population Health Sciences and Respiratory Sciences. Jonny has recently completed his PhD in rare disease natural history modelling and is now working across a range of projects using electronic health records. As well as this, he has an interest in patient and public involvement (PPI) in statistical methodology research, a vital part of research that is sometimes deemed not relevant or tokenistic in this field. To this end, Jonny has co-founded the PPI-SMART team (PPI for statistical methods and research techniques) based in the Biostatistics Research Group at Leicester, created to develop resources and guidance to support researchers and PPI members alike when conducting statistical methodology research, as well as a Community of Practice for statisticians conducting PPI