Data Access and Discovery - April

Health Data Research UK (HDR UK) is the national institute for health data with a mission to unite the UK’s health data to enable discoveries that improve people’s lives. It is a charity funded by UK Research and Innovation, the Department of Health and Social Care in England and equivalents in Northern Ireland, Wales and Scotland, and leading medical research charities.

Health Data Research UK (HDR UK)

Come join us at our Data Access and Discovery bi-monthly event: A FOREST THROUGH THE TRE's

*Please note: we have changed the date from Thursday 14 April to Thursday 21 April to avoid a clash with the Easter break* A FOREST THROUGH THE TRE'sJoin us at the next Data Access and Discovery event on Thursday 21 April at 11am.This month’s webinar will be hosted in partnership with NHS Transformation Directorate (NHS TD) to demonstrate recent developments around the use of Trusted Research Environments as one of the key components for the trustworthy access to health data for research.The panel will be chaired by Dr Tim Hubbard, Professor of Bioinformatics at King’s College London, Head of Genome Analysis at Genomics England; and co-author of the keynote paper for the sector: <a href="https://zenodo.org/record/5767586#.Yk1ziijMKbg" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">Principles and Best Practices, Towards TRE Ecosystems.</a>Nicola Brassington, Deputy Director of Data &amp; Analytics at NHS TD will lead the event with an introduction to their forthcoming policy on the use of Trusted Research Environments (also known as Secure Data Environments) within the NHS. Ben Goldacre, Bennett Professor of Evidence Based Medicine at the University of Oxford and Director of the Bennett Institute for Applied Data Science, will be speaking about OpenSafely, benefits of TREs and public engagement. His much broader recent review into better and safer use of health data for research and analysis for the benefit of patients and healthcare sector can be accessed <a href="https://www.gov.uk/government/publications/better-broader-safer-using-health-data-for-research-and-analysis" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer">here</a>.Debbie Keatley, Public Advisory Board member at HDR UK and use MY data member, will be bringing her own perspective as a member of the public to the discussions, highlighting the need for meaningful patient and public involvement in TREs and updating on the work of the Public Advisory Board in this area.Bradley Quinn is the Associate Director of Insight at Health Innovation Manchester and has led on the deployment of a Trusted Research Environment for Greater Manchester, including utilising data from GM’s shared care record to accelerate research throughout the pandemic and as part of the NHSE TD sub-national TRE programme. He brings his perspective of rapidly deploying an ICS TRE through cross-system collaboration.The panel also includes Dr Susheel Varma, Chief Technology Officer (interim), HDR UK and co-author of the keynote paper for the sector:<a href="https://zenodo.org/record/5767586#.Yk1zpSjMKbg" target="_blank" data-msys-clicktrack="0" rel="nofollow noopener noreferrer"> Principles and Best Practices, Towards TRE Ecosystems. </a>Other experts from across the sector to be confirmed. Register now to be kept up-to-date!

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Data Access and Discovery - April

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Data Access and Discovery - April

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