Kabuki UK

Kabuki UK has been supporting people who have Kabuki Syndrome and their families since 2011

Our aims are;

1. To provide information, advice and resources about Kabuki syndrome and raise awareness among the general public as well as the medical and research community

2. Work closely with other Kabuki syndrome advocacy groups worldwide

3. To organise and publicise both social and medical events, which will provide families affected with Kabuki with a chance to meet other families and experts.

4. To provide a system of grants for the purchase of equipment which families affected by Kabuki Syndrome may need but are unable to access from other sources.

5. To fundraise, with both regional and national events, to support the charity's aims.